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Big Pharma Mobilizing Patient Groups in Fight Over Clinical Trial Transparency

Posted by Simone Isadora Flynn, PhD, NPA Project Manager-Leveraging Social Media July 22, 2013 at 4:11 PM

Two of the largest pharmaceutical industry trade bodies — the European Federation of Pharmaceutical Industry Associations (EFPIA) and Pharmaceutical Research and Manufacturers of America (PhMRA) — plan to mobilize patient groups in the debate on clinical trial transparency.

Inform yourself about the leaked memo from industry bodies revealing the pharma strategy. Reported in The Guardian:

The memo, from Richard Bergström, director general of EFPIA, went to directors and legal counsel at Roche, Merck, Pfizer, GSK, AstraZeneca, Eli Lilly, Novartis and many smaller companies. It was leaked by a drugs company employee. The email describes a four-pronged campaign that starts with “mobilising patient groups to express concern about the risk to public health by non-scientific re-use of data”. Translated, that means patient groups go into bat for the industry by raising fears that if full results from drug trials are published, the information might be misinterpreted and cause a health scare.

Act on the issue by signing on to the All Trials Registered | All Results Reported Petition. AllTrials offers opportunities to push back against big pharma’s strategy to mobilize patient groups:

The best answer to this kind of strategy is for organisations and patient groups across Europe and the US to say they won’t be part of the EFPIA and PhMRA plan and for thousands of people to sign up to AllTrials.

The NPA is a signatory organization to AllTrials.

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